Helmsley Trust Awards $5.4 Million to Help Standardize Clinical Data

Helmsley Trust Awards $5.4 Million to Help Standardize Clinical Data

The Leona M. and Harry B. Helmsley Charitable Trust in New York City has announced a $5.4 million grant to the Clinical Data Interchange Standards Consortium (CDISC) in support of the Texas-based consortium's efforts to standardize clinical data and ease data sharing among research scientists.

The grant will enable CDISC to create data standards for type 1 diabetes and Crohn's disease research and build out its infrastructure, tools, and training programs for academic researchers. Benefitting both the T1D and CD communities, the new standards will enable research centers to share information seamlessly; improve the quality, usefulness, and consistency of their clinical data; and evaluate the effectiveness of emerging treatments. The grant also will enable CDISC to continue following consensus-based processes that consolidate and transform standards into real-world-data compatible standards and ensure optimal data quality, validity, and use.

"As a leading funder of chronic disease research, we see an urgent need for open data to accelerate the pace of research so that it can have positive impact on patients' lives," said Helmsley Charitable Trust CEO Stephanie Cuskley. "Data standardization is vital to creating an environment where new discoveries can happen more quickly. CDISC is a leader in making this possible."

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"CDISC to Enhance Standardization of Medical Research Data to Increase Ease of Sharing Globally." Leona M. and Harry B. Helmsley Charitable Trust Press Release 08/28/2018.