Tourette Association of America

Tourette Association of America
Founded: 1972

Mission: To improve life for people affected by Tourette syndrome and other tic disorders by raising public awareness and acceptance of Tourette's and advancing scientific understanding of and treatment options for the disorder.

About the Organization: Founded in 1972, the Tourette Association of America is a membership organization that works to raise awareness of and counter stereotypes related to Tourette syndrome; advocates for public policies and services that promote positive school, work, and social environments for those affected by TS; provides a supportive community for Tourette sufferers across the nation; and empowers that community to cope with the complexities of Tourette's and related disorders.

Current Programs: The Tourette Association provides information on medical diagnosis and treatment of Tourette's as well as medical and scientific research, including grants and fellowship opportunities aimed at advancing the understanding of the genetics, pathogenesis, pathophysiology, and  treatment of TS. The organization's education programs include seminars conducted in partnership with the U.S. Centers for Disease Control and Prevention, as well as resources for educators designed to help them address and manage students' TS symptoms and prevent bullying, while its education advocacy program gives families and advocates tools for pursuing the best program options and services for children with TS. The association's public policy efforts include issues related to education and disabilities, general health care, research funding, and the prevention of genetic and other forms of medical discrimination. In addition, the organization's Youth Ambassador Program teaches teens how to talk about TS with their peers at school, sports or scouts, and camp.

Website: Visitors to the TAA site can learn more about TS and its symptoms; search for doctors; and/or search, by state, for Tourette Association chapters and support groups, as well as  healthcare facilities, research centers, and academic institutions designated as Tourette Association Centers of Excellence. The site also offers videos and webinars and resources for educators and advocates. Those who wish to get involved can join the organization's email list, learn more about taking action during Tourette Awareness Month (May 15 to June 15), become a member and/or support Team Tourette, or make a donation.

Funding: The Tourette Association of America is funded by grants and contributions from foundations, corporations, government agencies, individuals, and members.

Address:
42-40 Bell Boulevard
Suite 205
Bayside, NY 11361
Phone: (718) 224-2999

FEATURED NPO SPOTLIGHT

August 7, 2018