The ASXL Rare Research Endowment Foundation supports research focused on advancing understanding of ASXL genes and improving the treatment and management of individuals with congenital ASXL syndromes.
To that end, the foundation has issued a Request for Proposals for basic scientific and clinical research projects.
Priority will be given to pilot projects designed to test new ideas about the pathogenesis and therapeutics of ASXL congenital syndromes. Of particular interest to the foundation are studies related to respiratory illness, cyclic vomiting, seizures, sleep issues, and identification of treatments that impact the daily life of people with ASXL syndromes and their families. One- or two-year grants of up to $100,000 will be awarded per project.
Proposals are accepted on a continual basis for subsequent review. Decisions will be made within six months of proposal submission.
To be eligible, applicants must be considered tax exempt under Section 501(c)(3) of the United States Internal Revenue Code.
See the ASXL Rare Research Endowment Foundation website for complete program guidelines and application instructions.